Journal of Rawalpindi Medical College | 2026
Authors: Javed M.; Hamdan Q.U.; Azam U.; Ali N.; Zafar L.; Zafar T.
DOI: 10.37939/jrmc.v30i1.2921
Journal: Journal of Rawalpindi Medical College
Year: 2026
Publisher: Rawalpindi Medical University
Document Type: Article
Open Access: All Open Access; Gold Open Access
Cited by: 0
Objective: To investigate the quality of life (QoL) of adolescents living with haemophilia and analyse the impact of sociodemographic factors, such as socioeconomic status, parents' qualifications, and clinical factors, including disease severity and type, on their physical and psychosocial health. Methods: This was a descriptive observational study using association analysis. Fifty adolescents with haemophilia A or B were recruited from the Hemophilia Treatment Center (HTC) managed by the Hemophilia Patients Welfare Society. The Pediatric Quality of Life Inventory (PedsQL) was used to quantify QoL. Statistical analyses, including one-way analysis of variance and correlations, were performed to identify associations between QoL scores and baseline factors. Results: The Majority of adolescents had compromised physical and psychosocial health. The mean physical health functioning scores and psychosocial health functioning scores were (44.03 ± 25.80) and (57.24 ± 18.03), respectively, indicating that both physical and psychosocial quality of life were compromised; however, physical health was more affected than psychosocial health. Analysis of the association between sociodemographic variables and physical and psychosocial health yielded statistically significant results for parents' qualification to physical and social functioning; however, the impact of clinical factors, such as disease severity and type, did not yield statistically significant results. Conclusion: The QoL of most adolescents with haemophilia is compromised, regardless of disease severity or type. Parents' qualifications play a positive role in adolescents' physical and social functioning. We suggest incorporating regular psychological evaluations and parent psychoeducation into management plans to improve the quality of care and QoL. © 2026.
Adolescents; Hemophilia; Quality of Life